We use a range of research methods, stakeholder consultation and co-design approaches to explore what is important for patients and carers from a broad variety of cultural and socio-demographic groups towards the end of life. We particularly aim to understand the experiences of populations with unequal access to palliative and end of life care services. Our bereavement research recognises the importance of understanding and supporting individual needs at this time.
Projects in this area include:
Muslim communities' perspectives and preferences regarding end-of-life symptom management: systematic review and narrative synthesis
Researchers: Joodi Mourhli, Chris Sosnowski, Isla Kuhn, Dr Ben Bowers
Islam is the fastest-growing religion globally, and in the UK, Muslims make up nearly four million individuals. Gaps in the delivery of culturally and religiously sensitive end-of-life symptom management contribute to unmet end-of-life care needs among Muslim patients. This systematic review synthesises research on Muslims’ perspectives and preferences regarding end-of-life symptom management to inform future practice and research priorities aimed at improving culturally sensitive care. Ten research databases were searched over the past 30 years, and 16 studies have been included.
This research is currently being written up for publication.
Exploring the experiences of Traveller populations regarding palliative care
A collaboration with Makerere University and the African Palliative Care Association to develop priorities for bereavement research in Sub-Saharan Africa.
More information to be provided.
Exploring cross cultural experiences of uncertainty in the UK and Taiwan.
The role of ethnicity in opioid prescribing and health service use in the last three months of life: a population-based comparative cohort study of cancer patients.
Researchers: Prof. J Koffmann(Hull York Medical School), Prof. Stephen Barclay, Rashmi Kumar (Kings College London), Dr Sabrina Bajwah (Kings College London)
Funder: NIHR RfPB Grant. NIHR ARC Affiliated Study