Online health forums and relationships with empowering clinicians reduce the isolation from living with a systemic autoimmune disease and can improve medical knowledge and resilience. This in-depth analysis of the LUPUS UK forum, led by Melanie Sloan from the BSG and involving forum members, LUPUS UK, psychologists and leading rheumatologists, found ‘Invalidation’ was the key […]
Diagnostic delays for people with lupus described in new study
People living with lupus report frequent lengthy time delays between their first symptoms and their lupus diagnosis, in new research from the University of Cambridge and LUPUS UK. The research indicates that the delays to diagnosis could be improved if clinicians had better knowledge of the disease, listened to and believed patient-reported symptoms and looked […]