Patient and public involvement in research: in this Primary Care Unit case study, we learn that the CanTest Collaborative has had PPI at its heart from the outset, aiming to improve the early diagnosis of cancer in primary care settings Summary: The CanTest Collaborative is a great example of how to include patients and members […]
LGBTQ+ public involvement panel choose priority themes for research into health of sexual and gender minority populations
Health services delivery, the prevention of health problems, and the intersectionality of sexual orientation and gender identity with other disadvantages are top priorities for LGBTQ+ health research, according to a new research prioritisation exercise carried out with members of the public. The topics were chosen from a list of healthcare research themes by a panel of people identifying as Lesbian, Gay, […]
Setting up my LGBTQ+ research prioritisation project
This blog by Dr Katie Saunders explores her recent work involving members of the public in setting priorities for future LGBTQ+ health research. I am a statistician working in the Primary Care Unit at the University of Cambridge. In addition to my work supporting students and researchers within the PCU, I am beginning to develop […]
The strength of the wolf is the pack: how a study of lupus patient experiences involved patients
Lupus patient experiences Lupus patients joined a research team at the University of Cambridge to study the experiences of patients with lupus and related diseases. Lupus is a chronic auto-immune condition which can damage many parts of the body, affecting people’s lives deeply, yet can take years to diagnose. The research, called the LISTEN study, […]
Patient and public involvement in general practice research
Ben Bowers, Roberta Lovick, Kristian Pollock and Stephen Barclay draw on experience as three researchers and one PPI group member in their recently published discussion of patient and public involvement in primary care research. Their article was published in the British Journal of General Practice. Highlighting some key challenges and practicalities involved in timely, proportionate and effective collaborations in […]
‘I thought it was just me’: mutual benefit from public involvement in research
Blog by Dr Anna Spathis, Consultant in Palliative Medicine, Addenbrooke’s Hospital, Associate Specialty Director in Palliative Medicine, School of Clinical Medicine and Dr Stephen Barclay, University Senior Lecturer in Palliative Care, Primary Care Unit, University of Cambridge. Teenage and young adults with cancer have inspired and steered a novel research study to develop a treatment […]