The Cambridgeshire & Peterborough (C&P) Project for Data Sharing in End of Life Care was started in 2012, originally as “Share my Care”. It is the Electronic Palliative Care Coordination System (EPaCCS) for Cambridgeshire.
The Health Innovation and Education Cluster (HIEC) at Cambridge University Health Partners (CUHP) funded the project. Ian Merrick was the original Project Manager and Dr Stephen Barclay its Clinical Lead.
Currently, the project is one of the Vanguard work streams within the C&P Clinical Commissioning Group. It is led by Dr Stephen Barclay.
The tools of the project are:
- End of Life Care “templates” for data entry (GP template, district nurses template);
- “view” – read-only, for urgent and emergency settings, such as out of hours, Accident & Emergency departments;
- Clinical Dashboard – offers an ‘at-a-glance’ view of the care for end of life care patients in a particular practice. This is, in fact, a detailed and powerful GSF register;
- Business Intelligence Dashboard – compares CCG practices on key metrics of end of life care.
SystmOne underpins the data sharing. An EMIS GP template, however, is also available.
You can find training videos here:
- GP template training video
- DN template training video
- Clinical Records Viewer (CRV, for read-only access in urgent and emergency services) training video.
You can also find a table of key features of the C&P Project in: Petrova M, Riley J, Abel J and Barclay S (2016) Crash course in EPaCCS (Electronic Palliative Care Coordination Systems): 8 years of successes and failures in patient data sharing to learn from. BMJ Supportive & Palliative Care. Online first: 16 Sep 16.
For further information, please contact Dr Stephen Barclay.