|Title:||The ‘oldest old’ near the end of life|
|Project Description:||Focusing on “older old” people approaching the end of their lives, this project combines qualitative and quantitative methods to examine end-of-life care issues from the perspective of very old people and their carers. Collaborating with one of the world’s longest-running studies of older old age, the Cambridge City over-75s Cohort (CC75C), we are working with a rare dataset gathered over three decades from following-up a representative population of older people into their last years. In-depth interviews with the surviving study participants, by then all in their late 90s or past 100, and with their relatives and other carers, including post-bereavement interviews, enriched this large epidemiological study in its later years. Research topics include the characterisation of cognitive impairment, physical disability, emotional well-being and self-rated health for the very old in their last year of life; their formal and informal support, service use and transitions in place of care; experiences and perceptions of care from both older old people’s and their carers’ perspectives; attitudes towards quality of life at the end of life and towards dying and death; and the symptoms and comfort levels experienced by very old people dying in different care settings.|
|Project Event :||Older old people – housing, health and care: perspectives on well-being near the end of life, care settings and moving in very old age
The fastest growing element of the population is the “oldest old”. The care sector is supporting older people with increasingly high care needs and growing numbers of people are dying older, but policy-makers and service planners rarely hear the perspectives of older old people, or of those who support them. The research team invited a wide range of people with personal or professional experience and interest in the issues raised in this project to an event on 3rd February 2017. They shared research findings on three key issues for the growing numbers of people now living into what has come to be called “older old age” and those who help care for and support them: care in the community, moving home and end of life care preferences. This well-attended stakeholder meeting also gathered views on how this research could help make a difference in practice, with much appreciated input from a very engaged audience discussing recommendations and next steps. Contact us for more information and see the presentations here:
Introduction : Older old people CC75C research stakeholder event 3Feb2017
|Start date:||1st October 2015|
|Contact person:||Jane Fleming|
|Contact Details:||Department of Public Health and Primary Care
Cambridge Institute of Public Health
University of Cambridge
Forvie Site, Robinson Way
CB2 OSRTelephone: 01223 330341
Fax: 01223 330330
|Collaborative:||Dr Stephen Barclay
Professor Carol Brayne
Dr Jackie Buck
Dr Morag Farquhar
|Funding Organisation:||The Abbeyfield Society (current funder; for full list of past funders please see http://www.cc75c.group.cam.ac.uk/pages/grant/)|
|Further Information, References and Publications|
|Dying comfortably in very old age with or without dementia in different care settings – a representative “older old” population study.
Jane Fleming, Rowan Calloway, Anouk Perrels, Morag Farquhar, Stephen Barclay, Carol Brayne on behalf of the CC75C Cambridge City over-75s Cohort study collaboration
BMC Geriatrics 2017 17/222 DOI 10.1186/s12877-017-0605-2
Policy briefing: Key findings and policy implications
Death and the oldest old: Attitudes and preferences for end-of-life care – Qualitative research within a population-based cohort study
Featured on BuzzFeed: http://www.buzzfeed.com/tomchivers/the-only-thing-im-worried-about-is-my-sister and
Very old people dying – what would relatives like to have seen managed differently?
Dying comfortably in very old age with or without dementia- a representative “older old” population study
Place of death and end-of-life transitions experienced by very old people with differing cognitive status: retrospective analysis of a prospective population-based cohort aged 85 and over
Support, loneliness and well-being amongst very old people in their last year of life
Place of death for the “oldest old”: ≥85-year-olds in the CC75C population-based cohort
The “oldest old” in the last year of life: population-based findings from CC75C study participants aged at least 85 at death
Featured on GeriPal (Geriatrics and Palliative Care blog) and
Inability to get up after falling, subsequent time on floor, and summoning help: prospective cohort study in people over 90.
Falls in advanced old age: recalled falls and prospective follow-up of over-90-year-olds in the Cambridge City over-75s Cohort study.
Cohort profile: the Cambridge City over-75s Cohort (CC75C).
See also the Cambridge City over-75s Cohort study website: http://www.cc75c.group.cam.ac.uk