Title: | Experiences of uncertainty in multimorbidity in Taiwan and Japan: an international qualitative study |
Project Description: | This projects explores experience of uncertainty in the context of multimorbidity in two Asian countries
Uncertainty is ubiquitous in healthcare, and can lead to distress and decision paralysis, potentially limiting individuals’ ability to engage with advance care planning. Understanding experiences of and preferred approaches to uncertainty is therefore prerequisite to optimal care planning. We know that care preferences and approaches to advance care planning are culturally specific, therefore it is likely that experiences of uncertainty also vary between culture. However a recent systematic review only identified literature from North America, Europe, and Australasia, and most participants in included studies were from white backgrounds. No studies were identified from Asia. To enable development of culturally appropriate interventions to address uncertainty in advanced illness, it is essential to identify how the experience of uncertainty varies between cultures. This project takes the first step to fill an important gap in knowledge by exploring experiences of uncertainty in multimorbidity in Taiwan and Japan. The project involves qualitative interviews with patients with multiple serious illnesses and their informal caregivers. |
Project organisation | |
Start date: | 1st February 2023 |
End date: | 1st February 2024 |
Contact person: | Dr Simon Etkind |
Contact Details: | Primary Care Unit East Forvie Building Forvie Site, Robinson Way Cambridge Cambs CB2 0SR UK Telephone: 01223 330329 Fax: 01223 762515 E-mail: sde23@medschl.cam.ac.uk |
Collaborative: | Dr Cheng-Pei Lin (Assistant Professor, National Yang Ming Chiao Tung University, Taiwan) Dr Jen-Kuei Peng (Dr Jen-Kuei Peng–Assistant Professor/Attending physician, National Taiwan University) Professor Yoshiyuki Kizawa (Professor, University of Tsukuba, Japan) |
Funding information | |
Funding Organisation: | National Science and Technology Council (NSTC), Taiwan |
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Further Information, References and Publications | |