| Title: | Experience and communication of uncertainty in multimorbidity |
| Project Description: | A high proportion of those in the last year of life have at least two serious illnesses – known as multimorbidity. They may experience uncertainty about their illness, care or the future. Those caring for them including informal family caregivers, health & social care professionals experience similar uncertainties. We lack understanding of the uncertainties experiences, the effect these may have, and how best to address and communicate uncertainty.
This research aims to explore experiences of uncertainty in older people with multimorbidity from multiple perspectives, to find ways of improving how it is communicated and addressed. Stage one is a systematic literature review (see https://www.crd.york.ac.uk/prospero/display_record.php?RecordID=227480 for details). Stage two is an interview and focus group study to explore experiences of uncertainty communication, identify areas of good practice, and develop these into an uncertainty communication toolkit, using elements of a co-design approach. Future work will involve implementation and evaluation of the communication toolkit |
| Project organisation | |
| Start date: | 17th August 2020 |
| End date: | 23rd June 2023 |
| Contact person: | Dr Simon Etkind |
| Contact Details: | Primary Care Unit East Forvie Building Forvie Site, Robinson Way Cambridge Cambs CB2 0SR UK Telephone: TBC E-mail: sde23@medschl.cam.ac.uk |
| Collaborative: | Professor Stephen Barclay Dr Anna Spathis |
| Funding information | |
| Funding Organisation: | Health Education England (HEE) |
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| Further Information, References and Publications | |
| Published literature review for stage 1: Total uncertainty: a systematic review and thematic synthesis of experiences of uncertainty in older people with advanced multimorbidity, their informal carers and health professionals.
https://academic.oup.com/ageing/article/51/8/afac188/6670562 |
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