| Title: | The CERTAIN Study: ConsEnsus on Research To Address serious Illness uNcertainty |
| Project Description: | Uncertainty is a core part of experience in serious illness. It affects patients, and can also affect carers and health professionals. Uncertainty can be very distressing and hinder decision making.
There are many gaps in our understanding of uncertainty, how it can best be approached or addressed, and what we should be aiming for when we address uncertainty. In this project, we are aiming to develop a list of important questions for future research into the uncertainties experienced by those with serious illness and those caring for them. To do so we will conduct focus groups and a ranking exercise during a one day workshop attended by health professionals, researchers, policy makers, and patient representatives. We hope that by prioritising the most important questions, this study will focus the field on the most important areas and enable uncertainty to be addressed more effectively. |
| Project organisation | |
| Start date: | 28th February 2023 |
| End date: | 31st March 2024 |
| Contact person: | Dr Simon Etkind |
| Contact Details: | Primary Care Unit East Forvie Building Forvie Site, Robinson Way Cambridge Cambs CB2 0SR UK E-mail: sde23@medschl.cam.ac.uk |
| Collaborative: | Professor Jonathan Koffman (Hull York Medical School) Professor Stephen Barclay Dr Anna Spathis Dr Ben Bowers Dr Sarah Hopkins Ms Deborah Critoph |
| Funding information | |
| Funding Organisation: | NIHR |
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| Further Information, References and Publications | |
| https://onlinesales.admin.cam.ac.uk/conferences-and-events/public-health-primary-care/uncertainty-in-serious-illness-state-of-the-science-workshop/uncertainty-in-serious-illness-state-of-the-science-workshop | |