Living with Breathlessness – Study Team & Advisory Group

The Study Team

	Morag Farquhar - Chief Investigator Background: Morag is a nurse by background but has worked in health services research for over 25 years. Her PhD was on the definition and measurement of quality of life in older people. Morag holds an NIHR Career Development Fellowship and is leading a programme of work on breathlessness. Role: As Chief Investigator Morag leads the Living with Breathlessness study.
	Caroline Moore – Research Assistant Background: Caroline has a nursing and health visitor background. Caroline’s PhD explored the experiences of female multigenerational caring. Her research interests include care-giving, women’s health issues, intergenerational family relationships and visual methods. Role: Caroline is one of three Research Assistants on the Living with Breathlessness study conducting interviews with patients and informal carers, analysing data and contributing to the dissemination of the study’s findings.
	Carole Gardener – Research Assistant Background: Carole is a social worker by background who has worked in a number of areas including mental health and family support. She has recently completed a Masters degree in Psychological Research Methods. Role: Carole is one of three Research Assistants on the Living with Breathlessness study conducting interviews with patients and informal carers, analysing data and contributing to the dissemination of the study’s findings.
	Hanne Holt Butcher – Research Assistant Background: Hanne has worked in research for a number of years in the private sector as an Insight’s Manager and Business Intelligence Manager. Hanne is currently studying for a psychology degree. Role: Hanne is one of three Research Assistants on the Living with Breathlessness study conducting interviews with patients and informal carers, analysing data and contributing to the dissemination of the study’s findings.
	Kevin Houghton – Administrative Assistant Background: Kevin spent 25 years working for Barclays Bank, and has been with University of Cambridge for 10 years in various finance and admin roles. Role: Kevin provides administrative support to all aspects of the Living with Breathlessness study.

Living with Breathlessness study operational team: (L to R) Hanne, Morag, Carole, Caroline & Kevin

The study advisory group

The Living with Breathlessness Programme Advisory Group (PAG) meets every six months with the operational study team to monitor study progress, advise the research team and help plan next steps.

Advisory group members: Dr Gail Ewing (Senior Research Associate, University of Cambridge), Dr Patrick White (Senior Lecturer & GP, King’s College London), Peter Burge (Associate Director of Choice Modelling and Valuation, RAND Europe), Dr Ravi Mahadeva (Consultant in Respiratory Medicine, CUHNFT), Dr Sara Booth (Honorary Consultant in Palliative Medicine, CUHNFT), Sophie Howson (Cambridgeshire Community Services), Dr Tom Ling (RAND Europe), Silvia Mendonca (statistician, University of Cambridge), Lawrence Ashelford (NHS Manager, CUHNFT), Dr Stephen Barclay (Senior Lecturer & GP, University of Cambridge), Professor Gunn Grande (University of Manchester), and Professor Chris Todd (University of Manchester). Former members: Dr Chris Palmer and Dr Richard Parker (formerly of University of Cambridge).

Some of the Living with Breathlessness study advisory group at a recent meeting…