News from the Living with Breathlessness Study

This programme of work ran from 2012 to 2016 and used comprehensive, multiple-perspective evidence to generate six key recommendations which address the needs of patients living with COPD and their informal carers. See this briefing note, published in November 2016 with the Public Health into Policy project at the Cambridge Institute of Public Health, which summarises the six key recommendations.

 

• December 2015 – BTS Winter Meeting 2015 - The team presented two papers at the British Thoracic Society Winter Meeting 2015, 2nd – 4th December; ‘Higher service use amongst patients with advanced COPD and psychological co-morbidities: associations with quality of life, co-morbidities and exacerbations’, and ‘Patients with advanced COPD have unmet care and support needs across clinical settings: how can we identify needs […]
• October 2015 – Primary Care Respiratory Society 2015 – - The team enjoyed presenting seven abstracts at the Primary Care Respiratory Society Conference on 16th- 17th October 2015. Amongst other abstracts, the team presented ‘Patient preferences for care in advanced COPD: results from a discrete choice experiment’. This abstract was produced in collaboration with RAND Europe. Caroline Moore from the team presented ‘Barriers and facilitators […]
• September 2015 – SAPC 2015 - The team enjoyed presenting two posters and two oral papers at SAPC in Oxford. We are currently looking forward to a local conference at the Cambridge Institute of Public Health as well as the Primary Care Respiratory Society in October.
• May 2015 : Living with Breathlessness papers presented - Three papers were presented at the European Association for Palliative Care in Copenhagen in May 2015 focussing on patients’ preferences for care, on whether patients can self-identify anxiety and depression and on carers’ psychological health. We also reported on our study recruitment strategies in a workshop on recruitment during the conference and on the impact […]
• February 2015 : Living with Breathlessness study in Canada - Living with Breathlessness study in Canada – The study was presented informally to 19 Canadian teams from the INSPIRED approaches to COPD collaborative who met in Vancouver for a workshop led by the Canadian Foundation for Health Innovation (CFHI). Morag Farquhar was part of the guest faculty at the workshop and informed the teams about […]
• January 2015 : Abstracts & Posters at conferences - The abstract “Enabling patient-centred care in advanced COPD: identifying care and support needs.” has been accepted as an oral paper at SAPC London annual scientific meeting that takes place 29-30th January 2015 at Madingley Hall, Cambridge Two abstracts have been accepted as posters at a joint meeting of Marie Curie Cancer Care and the Palliative […]
• October 2014: Living with Breathlessness – Keeping in Touch - We are pleased to report that we have obtained ethical approval to keep in touch with the Living with Breathlessness study‘s Longitudinal Interview Study cohort. This extension to the study is called “Living with Breathlessness – Keeping in Touch”. This will enable us to collect data for a further 18 months, giving us 3-year trajectory […]
• September 2014: Early study recruits completed data collection - Early patient, informal carer and health care professional recruits to the interview studies have now completed their 18-months’ participation. We are continuing with longitudinal data collection from the remainder of the cohort and plan to have completed their data collection in the first half of 2015. Data collection from our patient postal survey cohort is […]
• July 2014: Prize winners! - The team presented their poster ‘Preparedness to care in advanced COPD. How prepared are informal carers of patients with advanced COPD and what are their support needs? Baseline data from an ongoing longitudinal study’ at Cambridge Institute of Public Health and won a runner up poster prize.
• June 2014: Two papers presented at EACP 2014 in Lleida 5th-7th June - ‘Variation in care and support needs of patients with advanced COPD – baseline data from an ongoing longitudinal study of trajectories and need’ (an oral paper). ‘Preparedness to care in advanced COPD. How prepared are informal carers of patients with advanced COPD and what are their support needs? Baseline data from an ongoing longitudinal study’ (a […]
• April 2014 – Recruitment Closed - Having exceeded our overall recruitment target, study recruitment has now closed. We are continuing with longitudinal data collection from our cohorts of participants – patients and carers taking part in the Longitudinal Interview Study, patients taking part in the Care Preferences Survey and health care professionals taking part in the Barriers & Facilitators Study. It […]
• March 2014: Conference presentations - Poster presented at Marie Curie Cancer Care & Palliative Care Section of RSM conference, London, 28th March 2014; ‘How prepared are informal carers of patients with advanced COPD and what are their support needs? Baseline data from an ongoing longitudinal study’. Oral presentation at Palliative Care Congress, Harrogate, 12th-14th March 2014; ‘How prepared are informal carers […]
• November 2013: Exceeded our recruitment target! - Over the last year we have been working with over 140 GP practices across the East of England and South London to help us recruit patients to the Living with Breathlessness study.  Our overall recruitment target was 500 patients with COPD: we have exceeded this target with more than 530 patients with COPD participating. In […]