a) An investigation into the prevalence, impact and management of cancer-related fatigue in teenage and young adult patients
2013 – 2019
This doctoral research incorporated a systematic review, multicentre electronic survey and multiphase Fatigue Intervention Co-design Study. This work has led to the development of a ‘trial ready’ age-appropriate fatigue intervention and a series of high impact short information videos ‘made for young people by young people’, and received two University prizes.
Funded by Macmillan Cancer Support, NIHR CLAHRC East of England, School of Primary Care Research
- Spathis A, Booth S, Grove S, Hatcher H, Kuhn I, Barclay S. Teenage and young adult cancer-related fatigue is prevalent, distressing and neglected: it is time to intervene. A systematic literature review and narrative synthesis. Journal of Adolescent and Young Adult Oncology 2015;4(1):3-17
- Spathis A, Hatcher H, Booth S, Gibson F, Stone P, Abbas L, Barclay M, Brimicombe J, Thiemann P, McCabe M, Campsey R, Hooker L, Moss W, Robson J, Barclay S. Cancer-related fatigue in adolescents and young adults after cancer treatment: persistent and poorly managed. Journal of Adolescent and Young Adult Oncology 2017;6(3):489-493
b) PrimaryBreathe: programme to develop and test a brief remote primary care intervention for chronic breathlessness
2021 – 2026
This programme, involving seven studies across five UK recruitment hubs, aims to develop, test and support the implementation of an intervention for chronic breathlessness that can be delivered in primary care.
NIHR funding is currently being sought.
c) The Breathing, Thinking, Functioning Model
The Breathing, Thinking, Functioning (BTF) model
The BTF model is a tool to help health professionals understand and manage chronic breathlessness. The BTF model explains why breathlessness happens, and supports health professionals to provide personalised breathlessness management for their patients.
The BTF model has been developed by the Cambridge Breathlessness Intervention Service.