Online communities of patients with chronic conditions represent an increasingly important source of information. Recently there has been an upsurge in usage of social media for facilitating self-support and peer networking. This study aims to identify unmet needs of patients with stroke and investigate the value of an online forum as peer-to-peer self-management support in primary care.

Publications

1. Emotional adjustment post-stroke: a qualitative study of an online stroke community. (2019) Neuropsychol Rehabil
2. Online stroke forum as source of data for qualitative research: insights from a comparison with patients’ interviews. (2018) BMJ Open
3. Barriers and facilitators to adherence to secondary stroke prevention medications after stroke: Analysis of survivors’ and caregivers’ views from an online stroke forum. (2017) BMJ Open
4. How do stroke survivors and their carers use practitioners’ advice on secondary prevention medications? Qualitative study of an online forum. (2017) Family Practice
5. Stroke survivors and their families receive information and support on an individual basis from an online forum: descriptive analysis of a population of 2,348 patients and qualitative study of a sample of participants. (2016) BMJ Open
6. Making sense of patients’ internet forums: a systematic method using discourse analysis. (2014) Br J Gen Pract