Title:	Towards person-centred care: development of a patient support needs tool for patients with advanced Chronic Obstructive Pulmonary Disease (COPD) in primary care
Background:	Patients with advanced COPD have difficulty articulating their support needs to health care professionals, undermining person-centred care and support. A new intervention, the Support Needs Approach for Patients (SNAP), informed by, and modelled on, the evidence-based Carer Support Needs Assessment Tool (CSNAT), may enable patients to identify and express their support needs and start person-centred conversations with clinicians. SNAP is underpinned by an evidence-based tool to help patients consider and express their support needs. This study aimed to develop the SNAP tool, suitable for use in clinical practice.
Methodology description:	Two-stage qualitative study. Stage 1: domains of support need in advanced COPD were identified through a rapid review of the literature, analysis of qualitative data from the Living with Breathlessness Study (n=20 purposively sampled patients with advanced COPD) and patient focus groups. Stage 2: the draft SNAP tool was developed based on the identified domains of support need, then reviewed and refined in stakeholder workshops with patients, carers and clinicians to ensure acceptability and suitability for clinical practice.
Outcome measure description:	A comprehensive range of evidence-based domains of support need were identified which were formulated into questions for inclusion on the draft SNAP tool. The draft tool asks patients to consider whether they need more support in relation to 16 broad areas (domains) of support need e.g. knowing what to expect in the future, getting out and about, and support for their carer. Patients, carers and clinical stakeholders broadly endorsed the content and wording of the draft SNAP tool and the proposed Support Needs Approach for Patients which it underpins.
Project organisation
Start date:	1st February 2016
End date:	31st August 2016
Contact person:	Dr Morag Farquhar
Contact Details:	University of East Anglia School of Health Sciences Norwich Research Park Norwich Norfolk NR47TJ United Kingdom Telephone: (01223) 769294 Fax: E-mail: mcf22@medschl.cam.ac.uk
Collaborative:	Carole Gardener (Research Assistant): Primary Care Unit, University of Cambridge Dr Gail Ewing: Centre for Family Research, University of Cambridge Dr Patrick White: Division of Health and Social Care Research, Department of Primary Care and Public Health Sciences, Kings College London Dr Ravi Mahadeva: Addenbrooke’s Hospital, Cambridge University Hospitals NHS Foundation Trust Mrs Sophie Howson: Community Respiratory Team (Cambridge City and South Cambs) Dr Sara Booth: Palliative Care Team, Addenbrooke’s Hospital, Cambridge University Hospitals NHS Foundation Trust Dr John Rust: The Psychometrics Centre, University of Cambridge
Funding information
Funding Organisation:	School for Primary Care Research
Funding Reference:	SPCR Funding Round 11
Funding Amount:	£36,000
Further Information, References and Publications
Discussion : The SNAP tool has the potential to help patients with advanced COPD identify and express their support needs to clinicians in order to enable delivery of person-centred care. Future work will test tool validity and feasibility in everyday clinical practice.