| Title: | Marie Curie design to care |
| Project Description: | The UK is undergoing a demographic shift, with people living longer, and towards the end of their life, with increasing frailty and multiple health issues. Coupled with more people living alone and away from family members who often take on important caring roles, there are increasing pressures on health and social care services and the communities in which they live to provide appropriate palliative and end of life care.
To meet these changing needs this research explores innovative ways of delivering palliative and end of life care. Commissioned by Marie Curie Care, the study is part of a planned programme of work to develop a model that will be:
For people approaching the end of their lives it will translate into more personalised and effective care, which meets their needs in a more comprehensive and cohesive way than at present. This study forms the first part of this programme. It aims to design a “toolkit” or “framework” to facilitate this model of future end-of-life care in the community. |
| Methodology description: | Utilising the principles of experience-based co-design and systems-based service, the study will be iteratively conducted through ‘explore-create-evaluate’ cycles in two main phases.
Phase 1: Developing an understanding of potential future needs for approaches to palliative and end of life care. This will be conducted through workshops and interviews with stakeholders, care providers and users, and literature reviews. Phase 2: Establishing a framework for service design, including an exploration of the aspects of the “toolkit” to facilitate service design, the creation of “tools” to facilitate better service provision, and an evaluation of these “tools”. This will involve workshops to: understand the needs of those who develop new models of care; generate ideas for inclusion in the toolkit; define success criteria and to test how the toolkit will be used. Prototypes of the toolkit will be developed, with pilots of its utility and usability conducted in selected sites, with feedback workshops. A patient and public involvement (PPI) group (formed of patients, informal carers and patient representatives) and advisory group (formed of PPI group representatives, practitioners, service managers, policy leaders) will meet regularly with the research team to advise on study methods and delivery. |
| Collaborators: | Prof. John Clarkson, Director, Cambridge Engineering Design Centre, University of Cambridge Ian Hosking, Senior Research Associate, Engineering Design Centre, University of Cambridge Prof. Paul Chamberlain, Lab4Living Design Director, Sheffield Hallam University Dr Claire Craig, Lab4Living Health Director, Sheffield Hallam University Prof. Bill Noble, Chief Medical Officer, Marie Curie Care |
| Project organisation | |
| Start date: | 1st April 2017 |
| End date: | 31st March 2019 |
| Contact person: | Dr Stephen Barclay and Dr Sarah Hoare |
| Contact Details: | Primary Care Unit Institute of Public Health University Forvie Site, Robinson Way Cambridge Cambs CB2 0SR UK Telephone: (01223) 763082 Fax: 01223 762515 E-mail: sigb2@medschl.cam.ac.uk and seh91@medschl.cam.ac.uk |
| Further Information, References and Publications | |