| Title: | The ‘oldest old’ near the end of life |
| Project Description: | Focusing on “older old” people approaching the end of their lives, this project combines qualitative and quantitative methods to examine end-of-life care issues from the perspective of very old people and their carers. Collaborating with one of the world’s longest-running studies of older old age, the Cambridge City over-75s Cohort (CC75C), we are working with a rare dataset gathered over three decades from following-up a representative population of older people into their last years. In-depth interviews with the surviving study participants, by then all in their late 90s or past 100, and with their relatives and other carers, including post-bereavement interviews, enriched this large epidemiological study in its later years. Research topics include the characterisation of cognitive impairment, physical disability, emotional well-being and self-rated health for the very old in their last year of life; their formal and informal support, service use and transitions in place of care; experiences and perceptions of care from both older old people’s and their carers’ perspectives; attitudes towards quality of life at the end of life and towards dying and death; and the symptoms and comfort levels experienced by very old people dying in different care settings. |
| Project Event : | Older old people – housing, health and care: perspectives on well-being near the end of life, care settings and moving in very old age
The fastest growing element of the population is the “oldest old”. The care sector is supporting older people with increasingly high care needs and growing numbers of people are dying older, but policy-makers and service planners rarely hear the perspectives of older old people, or of those who support them. The research team invited a wide range of people with personal or professional experience and interest in the issues raised in this project to an event on 3rd February 2017. They shared research findings on three key issues for the growing numbers of people now living into what has come to be called “older old age” and those who help care for and support them: care in the community, moving home and end of life care preferences. This well-attended stakeholder meeting also gathered views on how this research could help make a difference in practice, with much appreciated input from a very engaged audience discussing recommendations and next steps. Contact us for more information and see the presentations here: Introduction : Older old people CC75C research stakeholder event 3Feb2017 1) Experience of formal and informal care in very old age 3) End of life care issues_attitudes & preferences of very old people |
| Project organisation | |
| Start date: | 1st October 2015 |
| End date: | Archived May 2023 |
| Contact person: | Jane Fleming |
| Contact Details: | Department of Public Health and Primary Care Cambridge Institute of Public Health University of Cambridge Forvie Site, Robinson Way Cambridge, UK CB2 OSRTelephone: 01223 330341 Fax: 01223 330330 E-mail: jane.fleming@phpc.cam.ac.uk |
| Collaborative: | Dr Stephen Barclay Professor Carol Brayne Dr Jackie Buck Dr Morag Farquhar |
| Funding information | |
| Funding Organisation: | For the full list of past funders please see http://www.cc75c.group.cam.ac.uk/pages/grant/ |
| Further Information, References and Publications | |
| Longitudinal analysis of the impact of loneliness on cognitive function over a 20-year follow-up Hanyuying Wang, Caroline Lee, Sally Hunter, Jane Fleming, Carol Brayne and The CC75C study collaboration Aging and Mental Health e-pub 20 Aug 2019, DOI: 10.1080/13607863.2019.1655704When frail older people relocate in very old age who makes the decision? Fiona Scheibl, Morag Farquhar, Jackie Buck, Stephen Barclay, Carol Brayne and Jane Fleming on behalf of the Cambridge City over-75s Cohort (CC75C) study collaboration Innovation in Aging Volume 3, Issue 4, August 2019, igz030, DOI: 10.1093/geroni/igz030The experience of transitions in care in very old age: implications for general practice Fiona Scheibl, Jane Fleming, Jackie Buck, Stephen Barclay, Carol Brayne and Morag Farquhar on behalf of the Cambridge City over-75s Cohort (CC75C) study collaboration Family Practice e-pub June 2019, DOI: 10.1093/fampra/cmz014Is loneliness associated with increased health and social care utilisation in the oldest old? Findings from a population-based longitudinal study Hanyuying Wang, Emily Zhao, Jane Fleming, Tom Dening, Kay-Tee Khaw, Carol Brayne & The CC75C Study Collaboration BMJ Open 2019;9:e024645Mortality risk of loneliness in the oldest old over a 10-year follow-up Hanyuying Wang, Yue Leng, Emily Zhao, Jane Fleming, Carol Brayne & The CC75C Study Collaboration Aging & Mental Health, e-pub 17 Nov 2018. DOI: Lack of associations between modifiable risk factors and dementia in the very old: Findings from the Cambridge City over-75s Cohort Study Dying comfortably in very old age with or without dementia in different care settings – a representative “older old” population study. Death and the oldest old: Attitudes and preferences for end-of-life care – Qualitative research within a population-based cohort study Featured on BuzzFeed: http://www.buzzfeed.com/tomchivers/the-only-thing-im-worried-about-is-my-sister and Very old people dying – what would relatives like to have seen managed differently? Dying comfortably in very old age with or without dementia- a representative “older old” population study Place of death and end-of-life transitions experienced by very old people with differing cognitive status: retrospective analysis of a prospective population-based cohort aged 85 and over Support, loneliness and well-being amongst very old people in their last year of life Place of death for the “oldest old”: ≥85-year-olds in the CC75C population-based cohort The “oldest old” in the last year of life: population-based findings from CC75C study participants aged at least 85 at death Featured on GeriPal (Geriatrics and Palliative Care blog) and Inability to get up after falling, subsequent time on floor, and summoning help: prospective cohort study in people over 90. Falls in advanced old age: recalled falls and prospective follow-up of over-90-year-olds in the Cambridge City over-75s Cohort study. Cohort profile: the Cambridge City over-75s Cohort (CC75C).
See also the Cambridge City over-75s Cohort study website: http://www.cc75c.group.cam.ac.uk |
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