|Title:||CAPE: Community cAre Pathways at the End of life: mapping the pathways to improve care.|
|Project Description:||Of the half million people who die each year in England, less than one in five die at home, yet home is where most would prefer to die. Some receive excellent care, but many do not. The NHS is seeking to raise the standard of care for all and enable more to die at home. The key question this study addresses is: for whom is home death “good”? Is it possible to identify:
a) Those for whom a “good death” at home is achievable, for whom greater effort is needed to optimise home care?
Our aims are:
|Methodology description:||Phase 1: we will summarize the records of 20 consecutive deceased patients in each practice.
Phase 2: we will discuss 10 recent deaths in each practice with the GPs and DNs
Phase 3: in 10 practices we will compare the views of carer, GP and DN of the care of two patients
Phase 4: we will then develop a toolkit for GPs and DNs to review and improve their care. This research will enable better identification of patients’ place of death and the development of services sensitive to the needs of patients and carers. The toolkit will help practitioners to improve care by learning from the experience of those close to deceased patients.
|Start date:||21st July 2012|
|End date:||30th April 2016|
|Contact person:||Dr Stephen Barclay|
|Contact Details:||Primary Care Unit
Institute of Public Health
University Forvie Site, Robinson Way
Telephone: (01223) 763082
Fax: 01223 762515
|Collaborative:||Brooke Swash, Emily Moran, Sue Boase|
|Funding Organisation:||NIHR Research for Patient Benefit|
|Further Information, References and Publications|