The latest crisis concerning UK end-of-life care arose in June 2018, with the publication of the Jones inquiry into hundreds of premature deaths at Gosport War Memorial Hospital in the 1990s. The inquiry concluded that misuse of diamorphine and syringe drivers, often following the clinical instruction ‘please make comfortable’, led to the excess deaths: a […]
‘I thought it was just me’: mutual benefit from public involvement in research
Blog by Dr Anna Spathis, Consultant in Palliative Medicine, Addenbrooke’s Hospital, Associate Specialty Director in Palliative Medicine, School of Clinical Medicine and Dr Stephen Barclay, University Senior Lecturer in Palliative Care, Primary Care Unit, University of Cambridge. Teenage and young adults with cancer have inspired and steered a novel research study to develop a treatment […]
Ambulance staff describe hospital as only feasible place of care for dying patients
Ambulance staff are responding to the needs of dying patients by taking them to hospital because of a lack of alternative community-based forms of care and limited access to patient information, according to a paper published in Palliative Medicine. The study, a sociological analysis of the experiences of ambulance staff attending to patients close to […]
Patient and public involvement – a matter of life and death
Blog by Dr Mila Petrova, Cambridge Palliative and End of Life Care Group, Primary Care Unit She was supposed to outlive you What would you do if your 26-year old daughter dies of cancer, in a chaotic ED corridor on a Friday, the child who was supposed to outlive you, the child whom you […]
Support needs of patients with chronic obstructive pulmonary disease (COPD): a new comprehensive framework of the evidence
Thirteen categories of support needs have been described for patients with Chronic Obstructive Pulmonary Disease (COPD), in a comprehensive review of evidence that identifies the full range of support needs for patients with COPD for the first time. The review, by Dr Morag Farquhar (University of East Anglia), Dr Gail Ewing from the Centre for […]
Into the future for end of life care design
The first two years of the five year Marie Curie Design to Care Programme, launched 25th April 2017, brings together experts from palliative care, engineering, design and social sciences to address the complex palliative care needs of the UK’s ageing population. The programme will develop a new approach to designing personalised care for people at […]
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