Below is a list of our 2015 – till present publications
You can find earlier publications on the webpages of individual researchers.
The alphabetical order reflects the names of co-authors from our team if the first author is from another institution.
Buck J, Webb L, Moth L, Morgan L and Barclay S (2018) “Persistent inequalities in Hospice at Home provision: findings from a service evaluation”. BMJ Supportive and Palliative Care. Online first: 14 February 2018, doi: 10.1136/bmjspcare-2017-001367
Butler C, Brigden C, Gage H, Williams P, Holdsworth L, Greene K, Wee B, Barclay S and Wilson P (2018) “Optimum hospice at home services for end-of-life care: protocol of a mixed-methods study employing realist evaluation”. BMJ Open,
Diver R, Quince T, Barclay S, Benson J, Brimicombe J, Wood D and Thiemann P (2018) “Palliative care in medical practice: medical students’ expectations”. BMJ Supportive and Palliative Care.
Gamlin C, Womersley K, Taylor H, Fay I, Brassett C and Barclay S (2017) “‘Can you be a doctor, even if you faint?’: The tacit lessons of cadaveric dissection”. Psychiatria Danubina, 29 (Suppl 3): 247-253.
Walker S, Gibbins J, Paes P, Barclay S, Adams A, Chandratilake M, Gishen F, Lodge P and Wee B (2017) “Preparing future doctors for palliative care: views of course organisers”. BMJ Supportive and Palliative Care, 0:1–8, doi:10.1136/bmjspcare-2017-001319
Walker S, Gibbins J, Paes P, Adams A, Chandratilake M, Gishen F, Lodge P, Wee B and Barclay S (2016) “Palliative care education for medical students: Differences in course evolution, organisation, evaluation and funding: A survey of all UK medical schools”. Palliative Medicine, 31(6): 575-581, doi: 10.1177/0269216316671279
Walker S, Gibbins J, Barclay S, Adams A, Paes P, Chandratilake M, Gishen F, Lodge P and Wee B (2016) “Progress and divergence in palliative care education for medical students: a comparative survey of UK course structure, content, delivery, contact with patients and assessment of learning”. Palliative Medicine, 30(9): 834-842, doi: 10.1177/0269216315627125
Barry C, Spathis A, Carding S, Treadell S and Barclay S (2017) “Palliative Care clinicians’ knowledge of the law regarding the use of the Deprivation of Liberty Safeguards”. BMJ Supportive and Palliative Care, 0:1–7, doi:10.1136/bmjspcare-2016-001186
Borgstrom E and Barclay S (2017) “Experience Based Design, Co-Design and Experience-based Co-Design in Palliative and End of Life Care”. BMJ Supportive and Palliative Care. Online first 16 Feb 2017, d
Borgstrom E, Morris R, Wood D, Cohn S and Barclay S (2016) “Learning to care: medical students’ reported value and evaluation of palliative care teaching involving meeting patients and reflective writing”. BMC Medical Education, 16: 306, doi: 10.1186/s12909-016-0827-6
Borgstrom E. and Walter T (2015) “Choice and compassion at the end of life: A critical analysis of recent English policy discourse”. Social Science and Medicine, 135-137:99-105.
Borgstrom E (2015) “Advance care planning: between tools and relational end-of-life care”. BMJ Supportive and Palliative Care, 5:216-217. *selected as editor’s choice for the issue
Borgstrom E (2015) “Planning for an (un)certain future: Choice in English end-of-life care”. Current Sociology, 60(5):700-713.
Clarke G, Fistein E, Holland A, Tobin J, Barclay S (Sam) and Barclay S (Stephen) (2018) “Planning for an uncertain future in progressive neurological disease: a qualitative study of patient and family decision-making with a focus on eating and drinking”. BMC Neurology, 18:115. https://doi.org/10.1186/s12883-018-1112-6
Clarke G, Fistein E, Holland A, Barclay M, Thiemann P and Barclay S (2017) “Preferences for care towards the end of life when decision-making capacity may be impaired: A large scale cross-sectional survey of public attitudes in Great Britain and the United States”. PLoS ONE, 5 Apr, doi: 10.1371/journal.pone.0172104
Clarke G, Galbraith S, Woodward J, Holland A and Barclay S (2016) Chapter 9, “Substituted or supported decisions? Examining models of decision-making within inter-professional team decision-making for individuals at risk of lacking decision-making capacity”. In Salloch S, Sandow V, Schildmann J and Vollmann J (eds). Ethics and Professionalism in Healthcare: Transition and Challenges. London: Routledge: 113-125.
Clarke G, Holland A, Woodward J, Galbraith S and Barclay S (2015) “Eating and drinking interventions for people at risk of lacking decision-making capacity: Who decides and how?”. BMC Medical Ethics, 16:41.
Clarke G, Johnson S, Corrie P, Kuhn I and Barclay S (2015). “Withdrawal of anticancer therapy in advanced disease: a systematic literature review”. BMC Cancer, 15: 892, doi: 10.1186/s12885-015-1862-0
Dzeng E, Colaianni A, Levine D, Roland M, Kelly M, Barclay S, Smith T J (2016) “Moral Distress Amongst American Physician Trainees Regarding Futile Treatments at the End of Life: A Qualitative Study”. The Journal of General Internal Medicine, 31(1):93-99.
Dzeng E, Colaianni A, Chander G, Smith T, Roland M, Kelly M, Barclay S, Levine D (2015) “Influence of Institutional Culture and Policies on Do-Not-Resuscitate Decision Making at the End of Life”. JAMA Internal Medicine, 175(5):812-819.
Fleming J, Calloway R, Perrels A, Farquhar M, Barclay S, Brayne C and on behalf of the Cambridge City over-75s Cohort (CC75C) study (2017) “Dying comfortably in very old age with or without dementia in different care settings – a representative “older old” population study”. BMC Geriatrics, 17(222), doi: 10.1186/s12877-017-0605-2
Fleming J, Farquhar M, CC75C study collaboration, Brayne C and Barclay S (2016) “Death and the Oldest Old: Attitudes and Preferences for End-of-Life Care – Qualitative Research within a Population-Based Cohort Study“. PLoS ONE, 11(4), doi:10.1371/journal.pone.0150686
Hiscock A and Barclay S (2017) ” ‘It’s a hard conversation to have’. Healthcare professionals’ views concerning advance care discussions with young people affected by life-limiting neuromuscular diseases: an interview study”. BMJ Supportive and Palliative Care. Online first 19 Jun 2017, doi: 10.1136/bmjspcare-2017-001369
Hiscock A, Kuhn I, Barclay S. (2016) “Advance care discussions with young people affected by life-limiting neuromuscular diseases: a systematic literature review and narrative synthesis”. Neuromuscular Disorders, 27(2): 115-119, doi: 10.1016/j.nmd.2016.11.011
Hoare S, Kelly MP, Prothero L and Barclay S (2018). “Ambulance staff and end-of-life hospital admissions: A qualitative interview study”. Palliative Medicine. Online first: 11 June 2018, https://doi.org/10.1177/0269216318779238
Petrova M, Barclay M, Barclay S S and Barclay S (2017) “Between “the best way to deliver patient care” and “chaos and low clinical value”: General Practitioners’ and Practice Managers’ views on data sharing”. International Journal of Medical Informatics, 104:74-83, https://doi.org/10.1016/j.ijmedinf.2017.05.009
Petrova M, Riley J, Abel J and Barclay S (2016) “Crash course in EPaCCS (Electronic Palliative Care Coordination Systems): 8 years of successes and failures in patient data sharing to learn from”. BMJ Supportive & Palliative Care. Online first: 16 Sep 16, doi: 10.1136/bmjspcare-2015-001059
Powell RA, Schwartz L, Nouvet E, Sutton B, Petrova M, Marston J, Munday D and Radbruch L (2017) “Palliative care in humanitarian crises: Always something to offer”. The Lancet, 389 (10078): 1498–9, doi: http://dx.doi.org/10.1016/S0140-6736(17)30978-9
Ryan R, Clow A, Spathis A, Smyth N, Barclay S, Fallon M and Booth S (2017) “Salivary diurnal cortisol profiles in patients suffering from chronic breathlessness receiving supportive and palliative care services: A cross-sectional study”. Psychoneuroendocrinology, 79: 134-145, doi: 10.1016/j.psyneuen.2017.01.025
Ryan R, Spathis A, Clow A and Booth S (2016) “Breathlessness and Inflammation: potential relationships and implications”. Current Opinion in Supportive & Palliative Care, 10(3): 242-8, doi: 10.1097/SPC.0000000000000229
Ryan R, Booth S, Spathis A, Mollart S and Clow A (2016) “Use of Salivary Diurnal Cortisol as an Outcome Measure in Randomised Controlled Trials: a Systematic Review”. Annals of Behavioral Medicine, 50 (2): 210-236, doi: 10.1007/s12160-015-9753-9
Booth S, Galbraith S, Ryan R, Parker R and Johnson M (2016) “The importance of the feasibility study: Lessons from a study of the hand-held fan used to relieve dyspnea in people who are breathless at rest”. Palliative Medicine, 30 (5): 504-509, doi: 10.1177/0269216315607180