Below is a list of our 2015 – till present publications (please see individual researchers’ pages for earlier publications):
Walker S, Gibbins J, Paes P, Barclay S, Adams A, Chandratilake M, Gishen F, Lodge P and Wee B (2017) “Preparing future doctors for palliative care: views of course organisers”. BMJ Supportive and Palliative Care, 0:1–8, doi:10.1136/bmjspcare-2017-001319
Walker S, Gibbins J, Paes P, Adams A, Chandratilake M, Gishen F, Lodge P, Wee B and Barclay S (2016) “Palliative care education for medical students: Differences in course evolution, organisation, evaluation and funding: A survey of all UK medical schools”. Palliative Medicine, 31(6): 575-581, doi: 10.1177/0269216316671279
Walker S, Gibbins J, Barclay S, Adams A, Paes P, Chandratilake M, Gishen F, Lodge P and Wee B (2016) “Progress and divergence in palliative care education for medical students: a comparative survey of UK course structure, content, delivery, contact with patients and assessment of learning”. Palliative Medicine, 30(9): 834-842, doi: 10.1177/0269216315627125
Barry C, Spathis A, Carding S, Treadell S and Barclay S (2017) “Palliative Care clinicians’ knowledge of the law regarding the use of the Deprivation of Liberty Safeguards”. BMJ Supportive and Palliative Care, 0:1–7, doi:10.1136/bmjspcare-2016-001186
Borgstrom E and Barclay S (2017) “Experience Based Design, Co-Design and Experience-based Co-Design in Palliative and End of Life Care”. BMJ Supportive and Palliative Care. Online first 16 Feb 2017, d
Borgstrom E, Morris R, Wood D, Cohn S and Barclay S (2016) “Learning to care: medical students’ reported value and evaluation of palliative care teaching involving meeting patients and reflective writing”. BMC Medical Education, 16: 306, doi: 10.1186/s12909-016-0827-6
Borgstrom E. and Walter T (2015) “Choice and compassion at the end of life: A critical analysis of recent English policy discourse”. Social Science and Medicine, 135-137:99-105.
Borgstrom E (2015) “Advance care planning: between tools and relational end-of-life care”. BMJ Supportive and Palliative Care, 5:216-217. *selected as editor’s choice for the issue
Borgstrom E (2015) “Planning for an (un)certain future: Choice in English end-of-life care”. Current Sociology, 60(5):700-713.
Clarke G, Fistein E, Holland A, Barclay M, Thiemann P and Barclay S (2017) “Preferences for care towards the end of life when decision-making capacity may be impaired: A large scale cross-sectional survey of public attitudes in Great Britain and the United States”. PLoS ONE, 5 Apr, doi: 10.1371/journal.pone.0172104
Clarke G, Galbraith S, Woodward J, Holland A and Barclay, S (2016). Chapter 9, “Substituted or supported decisions? Examining models of decision-making within inter-professional team decision-making for individuals at risk of lacking decision-making capacity”. In Salloch S, Sandow V, Schildmann J and Vollmann J (eds). Ethics and Professionalism in Healthcare: Transition and Challenges. London: Routledge: 113-125.
Clarke G, Holland A, Woodward J, Galbraith S and Barclay S (2015) “Eating and drinking interventions for people at risk of lacking decision-making capacity: Who decides and how?”. BMC Medical Ethics, 16:41.
Clarke G, Johnson S, Corrie P, Kuhn I and Barclay S (2015). “Withdrawal of anticancer therapy in advanced disease: a systematic literature review”. BMC Cancer, 15: 892, doi: 10.1186/s12885-015-1862-0
Dzeng E, Colaianni A, Levine D, Roland M, Kelly M, Barclay S, Smith T J (2016) “Moral Distress Amongst American Physician Trainees Regarding Futile Treatments at the End of Life: A Qualitative Study”. The Journal of General Internal Medicine, 31(1):93-99.
Dzeng E, Colaianni A, Chander G, Smith T, Roland M, Kelly M, Barclay S, Levine D (2015) “Influence of Institutional Culture and Policies on Do-Not-Resuscitate Decision Making at the End of Life”. JAMA Internal Medicine, 175(5):812-819.
Fleming J, Farquhar M, CC75C study collaboration, Brayne C and Barclay S (2016) “Death and the Oldest Old: Attitudes and Preferences for End-of-Life Care – Qualitative Research within a Population-Based Cohort Study“. PLoS ONE, 11(4), doi:10.1371/journal.pone.0150686
Hiscock A and Barclay S (2017) ” ‘It’s a hard conversation to have’. Healthcare professionals’ views concerning advance care discussions with young people affected by life-limiting neuromuscular diseases: an interview study”. BMJ Supportive and Palliative Care. Online first 19 Jun 2017, doi: 10.1136/bmjspcare-2017-001369
Hiscock A, Kuhn I, Barclay S. (2016) “Advance care discussions with young people affected by life-limiting neuromuscular diseases: a systematic literature review and narrative synthesis”. Neuromuscular Disorders, 27(2): 115-119, doi: 10.1016/j.nmd.2016.11.011
Hoare S, Morris Z S, Kelly M P, Kuhn I and Barclay S (2015) “Do Patients Want to Die at Home? A Systematic Review of the UK Literature, Focused on Missing Preferences for Place of Death”. PLoS ONE, 10(11).
Petrova M, Riley J, Abel J and Barclay S (2016) “Crash course in EPaCCS (Electronic Palliative Care Coordination Systems): 8 years of successes and failures in patient data sharing to learn from”. BMJ Supportive & Palliative Care. Online first: 16 Sep 16, doi: 10.1136/bmjspcare-2015-001059
Petrova M, Barclay M, Barclay S S and Barclay S (2017) “Between “the best way to deliver patient care” and “chaos and low clinical value”: General Practitioners’ and Practice Managers’ views on data sharing”. International Journal of Medical Informatics, 104:74-83, https://doi.org/10.1016/j.ijmedinf.2017.05.009
Powell RA, Schwartz L, Nouvet E, Sutton B, Petrova M, Marston J, Munday D and Radbruch L (2017) “Palliative care in humanitarian crises: Always something to offer”. The Lancet, 389 (10078): 1498–9, doi: http://dx.doi.org/10.1016/S0140-6736(17)30978-9
Ryan R, Clow A, Spathis A, Smyth N, Barclay S, Fallon M and Booth S (2017) “Salivary diurnal cortisol profiles in patients suffering from chronic breathlessness receiving supportive and palliative care services: A cross-sectional study”. Psychoneuroendocrinology, 79: 134-145, doi: 10.1016/j.psyneuen.2017.01.025
Ryan R, Spathis A, Clow A and Booth S (2016) “Breathlessness and Inflammation: potential relationships and implications”. Current Opinion in Supportive & Palliative Care, 10(3): 242-8, doi: 10.1097/SPC.0000000000000229
Ryan R, Booth S, Spathis A, Mollart S and Clow A (2016) “Use of Salivary Diurnal Cortisol as an Outcome Measure in Randomised Controlled Trials: a Systematic Review”. Annals of Behavioral Medicine, 50 (2): 210-236, doi: 10.1007/s12160-015-9753-9
Booth S, Galbraith S, Ryan R, Parker R and Johnson M (2016) “The importance of the feasibility study: Lessons from a study of the hand-held fan used to relieve dyspnea in people who are breathless at rest”. Palliative Medicine, 30 (5): 504-509, doi: 10.1177/0269216315607180
Spathis A, Hatcher H, Booth S, Gibson F, Stone P, Abbas L, Barclay M, Brimicombe J, Thiemann P, McCabe M G, Campsey R, Hooker L, Moss W, Robson J and Barclay S (2017) “Cancer-Related Fatigue in Adolescents and Young Adults After Cancer Treatment: Persistent and Poorly Managed”. Journal of Adolescent and Young Adult Oncology, 6(3): 1 – 5, doi.org/10.1089/jayao.2017.0037
Spathis A, Booth S, Grove S, Hatcher H, Kuhn I and Barclay S (2015) “Teenage and Young Adult Cancer-Related Fatigue is Prevalent, Distressing, and Neglected: It IS Time to Intervene. A Systematic Literature Review and Narrative Synthesis”. Journal of Adolescent and Young Adult Oncology, 4(1): 3-17.
Swash, B, Hulbert-Williams, N & Bramwell, R (2016) “Haematological cancers… They’re a funny bunch”: A qualitative study of unmet need in haematological cancer”. Journal of Health Psychology. Online first: 28 Jul 2016, https://doi.org/10.1177/1359105316660179
Swash B, Bramwell R and Hulbert-Williams N (2015) “Unmet psychosocial needs and their psychological impact in haematological cancer survivors”. Psycho-Oncology, 24 (Supp 1): 2.
Wyatt D, Hulbert-Williams N and Swash B (2015) “Cancer in Context”. In Wyatt D and Hulbert-Williams N (eds). Cancer and Cancer Care. London: Sage.
Thiemann P, Quince T, Benson J, Wood D and Barclay S (2015) “Medical Students’ Death Anxiety: Severity and Association with Psychological Health and Attitudes Toward Palliative Care”. Journal of Pain and Symptom Management, 50(3): 335-342.e2.
Thomas T, Kuhn I and Barclay S (2016). “Inpatient transfer to a care home for end-of-life care: What are the views and experiences of patients and their relatives? A systematic review and narrative synthesis of the UK literature”. Palliative Medicine. Online first: 28 Jul 2016.