Below is a list of our 2015 – till present publications. Please see individual researchers’ pages for earlier publications.
Walker S, Gibbins J, Paes P, Adams A, Chandratilake M, Gishen F, Lodge P, Wee B, Barclay S. (2016). “Palliative care education for medical students: differences in course development, organisation, evaluation and funding. A survey of all UK medical schools”. Palliative Medicine. Online first 6 Oct 2016, doi: 10.1177/0269216316671279
Borgstrom E. and Walter T (2015) “Choice and compassion at the end of life: A critical analysis of recent English policy discourse”. Social Science and Medicine, 135-137:99-105.
Borgstrom E (2015) “Advance care planning: between tools and relational end-of-life care”. BMJ Supportive and Palliative Care, 5:216-217. *selected as editor’s choice for the issue
Borgstrom E (2015) “Planning for an (un)certain future: Choice in English end-of-life care”. Current Sociology, 60(5):700-713.
Clarke G, Fistein E, Holland A, Barclay M, Thiemann P and Barclay S (2017) “Preferences for care towards the end of life when decision-making capacity may be impaired: A large scale cross-sectional survey of public attitudes in Great Britain and the United States”. PLoS ONE, 5 Apr, doi: 10.1371/journal.pone.0172104
Clarke G, Galbraith S, Woodward J, Holland A and Barclay, S (2016). Chapter 9, “Substituted or supported decisions? Examining models of decision-making within inter-professional team decision-making for individuals at risk of lacking decision-making capacity”. In Salloch S, Sandow V, Schildmann J and Vollmann J (eds). Ethics and Professionalism in Healthcare: Transition and Challenges. London: Routledge: 113-125.
Clarke G, Holland A, Woodward J, Galbraith S and Barclay S (2015) “Eating and drinking interventions for people at risk of lacking decision-making capacity: Who decides and how?”. BMC Medical Ethics, 16:41.
Dzeng E, Colaianni A, Levine D, Roland M, Kelly M, Barclay S, Smith T J (2016) “Moral Distress Amongst American Physician Trainees Regarding Futile Treatments at the End of Life: A Qualitative Study”. The Journal of General Internal Medicine, 31(1):93-99.
Dzeng E, Colaianni A, Chander G, Smith T, Roland M, Kelly M, Barclay S, Levine D (2015) “Influence of Institutional Culture and Policies on Do-Not-Resuscitate Decision Making at the End of Life”. JAMA Internal Medicine, 175(5):812-819.
Fleming J, Farquhar M, CC75C study collaboration, Brayne C and Barclay S (2016) “Death and the Oldest Old: Attitudes and Preferences for End-of-Life Care – Qualitative Research within a Population-Based Cohort Study“. PLoS ONE, 11(4), doi:10.1371/journal.pone.0150686
Hiscock A, Kuhn I, Barclay S. (2016) “Advance care discussions with young people affected by life-limiting neuromuscular diseases: a systematic literature review and narrative synthesis”. Neuromuscular Disorders, 27(2): 115-119, doi: 10.1016/j.nmd.2016.11.011
Hoare S, Morris Z S, Kelly M P, Kuhn I and Barclay S (2015) “Do Patients Want to Die at Home? A Systematic Review of the UK Literature, Focused on Missing Preferences for Place of Death”. PLoS ONE, 10(11).
Petrova M, Riley J, Abel J and Barclay S (2016) “Crash course in EPaCCS (Electronic Palliative Care Coordination Systems): 8 years of successes and failures in patient data sharing to learn from”. BMJ Supportive & Palliative Care. Online first: 16 Sep 16, doi: 10.1136/bmjspcare-2015-001059
Petrova M, Barclay M, Barclay S S and Barclay S (2017) “Between “the best way to deliver patient care” and “chaos and low clinical value”: General Practitioners’ and Practice Managers’ views on data sharing”. International Journal of Medical Informatics, 104:74-83, https://doi.org/10.1016/j.ijmedinf.2017.05.009
Powell RA, Schwartz L, Nouvet E, Sutton B, Petrova M, Marston J, Munday D and Radbruch L (2017) “Palliative care in humanitarian crises: Always something to offer”. The Lancet, 389 (10078): 1498–9, doi: http://dx.doi.org/10.1016/S0140-6736(17)30978-9
Ryan R, Clow A, Spathis A, Smyth N, Barclay S, Fallon M and Booth S (2017) “Salivary diurnal cortisol profiles in patients suffering from chronic breathlessness receiving supportive and palliative care services: A cross-sectional study”. Psychoneuroendocrinology, 79: 134-145, doi: 10.1016/j.psyneuen.2017.01.025
Ryan R, Spathis A, Clow A and Booth S (2016) “Breathlessness and Inflammation: potential relationships and implications”. Current Opinion in Supportive & Palliative Care, 10(3): 242-8, doi: 10.1097/SPC.0000000000000229
Ryan R, Booth S, Spathis A, Mollart S and Clow A (2016) “Use of Salivary Diurnal Cortisol as an Outcome Measure in Randomised Controlled Trials: a Systematic Review”. Annals of Behavioral Medicine, 50 (2): 210-236, doi: 10.1007/s12160-015-9753-9
Booth S, Galbraith S, Ryan R, Parker R and Johnson M (2016) “The importance of the feasibility study: Lessons from a study of the hand-held fan used to relieve dyspnea in people who are breathless at rest”. Palliative Medicine, 30 (5): 504-509, doi: 10.1177/0269216315607180
Spathis A, Booth S, Grove S, Hatcher H, Kuhn I and Barclay S (2015) “Teenage and Young Adult Cancer-Related Fatigue is Prevalent, Distressing, and Neglected: It IS Time to Intervene. A Systematic Literature Review and Narrative Synthesis”. Journal of Adolescent and Young Adult Oncology, 4(1): 3-17.
Swash, B, Hulbert-Williams, N & Bramwell, R (2016) “Haematological cancers… They’re a funny bunch”: A qualitative study of unmet need in haematological cancer”. Journal of Health Psychology. Online first: 28 Jul 2016, https://doi.org/10.1177/1359105316660179
Swash B, Bramwell R and Hulbert-Williams N (2015) “Unmet psychosocial needs and their psychological impact in haematological cancer survivors”. Psycho-Oncology, 24 (Supp 1): 2.
Wyatt D, Hulbert-Williams N and Swash B (2015) “Cancer in Context”. In Wyatt D and Hulbert-Williams N (eds). Cancer and Cancer Care. London: Sage.
Thiemann P, Quince T, Benson J, Wood D and Barclay S (2015) “Medical Students’ Death Anxiety: Severity and Association with Psychological Health and Attitudes Toward Palliative Care”. Journal of Pain and Symptom Management, 50(3): 335-342.e2.
Thomas T, Kuhn I and Barclay S (2016). “Inpatient transfer to a care home for end-of-life care: What are the views and experiences of patients and their relatives? A systematic review and narrative synthesis of the UK literature”. Palliative Medicine. Online first: 28 Jul 2016.